You are forewarned. If you really feel the need for shiny and/or happy, please go ogle the band or scroll down to the weekly list.
I am currently in what I am guessing is my first true Sjogren’s flare. It could be something else entirely (yes, I have a doctor’s appointment to sort that out and boy, do I hope it isn’t) but it seems about right. Usually whenever my body throws something new at me I tend to cry a lot. And then laugh. Because what else can you do? I think I’m feeling a little better because both today and yesterday I’ve been able to sit up and accomplish things, which is good. There’s baking in my future if I can get enough oomph going. There’s a Palladian bridge there too, dependent on even more oomph. Needing lotsa oomph.
But yes, thinking. My life has been something like a ride I once took on a bottom glass boat out at Catalina. Life and activity and brightness along the shallows and then whoosh! Deep trench down into blackness. See, I was a sickly child, but I wasn’t sick. I had allergies and asthma and I am a klutz in the extreme so I had a lot of breaks and strains. But I was mainly functional. I had really good grades, something akin to a social life, I was in orchestra, marching band, on the yearbook staff, I did Girl Scouts, went to catechism classes, took GATE summer school, went to summer camp and science camp… in short, I could function alright. True I had an asshat doctor who pulled me out of tennis lessons (his diagnosis: chronic bronchitis and I shouldn’t be out in the night air) and a visitation schedule from the sixth ring of hell that cut into being a normal kid. But mostly, functional.
In high school things just went batshit on more than one level. But I was still functional. First two years of university and I started out of the shallows. By the fourth year I was well on my way down that trench into illness. There’s a trend, a clear cut arc of where my body went no and I didn’t listen. And now I’m here. Mostly housebound and all around frustrated. It’s dark down here, damnit. And I remember not being here. And that is probably the hardest thing.
And now the weekly thing a day early:
Something Good: No Purl Monkeys knit up very fast. I have yarn on its way to me. I have kind friends who I appreciate, even if they do live halfway around the world.
Knitting: Same as last week. Knitting’s been slow going of late.
Reading: A Haunted House and Other Short Stories by Virginia Woolf and Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties by Laurie Edwards (which thus far I highly recommend)
Writing/Crafting: Not a bloomin’ thing. This creativity block is not helping things. Anyone have any tips on creative block issues?
This Week’s Plan: If there is oomph: baking, a trip to Wilton House. If there is no oomph, lots of reading.
And now a question for the Mac users: what word processor do you like best for Mac? I tried Pages and couldn’t get into it and TextEdit just doesn’t cut it. I have heard nothing good about the newest Office and I hate XML with a passion. At the moment I’m trying Open Office which is like early Word by the looks of it. Anything fantastic that I am missing because I’m a newbie? Ta.
Hope your weekend is full of oomph.
July 17, 2008 at 5:24 pm
I hope your doctor’s visit turns up more encouraging news and that you’re feeling better soon!
July 17, 2008 at 6:24 pm
Good luck at the doctors. I hope you’re able to find your shiny happy place again soon.
July 17, 2008 at 7:41 pm
Hope the doctor is able to help, at least a little bit. I use Word 2004 on my two Macs, and I like it just fine. My tech people have refrained from upgrading it until some more bugs are worked out, I think.
July 17, 2008 at 9:08 pm
Health-wise, our lives have been very similar. I used to be such an active social kid - I had my health problems but they didn’t keep me down … for long anyway. It’s hard not being able to be that person anymore. It’s hard not to get down about that. It’s okay to grieve for the past.
July 17, 2008 at 11:12 pm
I hope the doctor finds a way to make life more bearable for you. I’m impressed that you still continue to come up with something good even after everything you physically go through. I think it’s telling about your character and something we all should try to do on a daily basis.
July 18, 2008 at 5:28 am
I’m so sorry you’re not feeling well. I hope the Dr.’s can find something to help you.
July 18, 2008 at 3:51 pm
Ooh, you’re reading Virginia Woolf! I’m reading the same book, oddly enough. I have this old copy with corners worn down into that rounded edge that feels like velvet when you run your fingers over it, and I’m such a sucker for that.
Mac: I vote Microsoft Office, 2007. I love the word programme, and it works with Mac OS.
Writing: You know what they say- writers write. keep those fingres typing, even if all that comes out is crap. You can sift through it all and look for nuggets of gold later, it’s more important to just get into the daily habit.